Nothing About Us Without Us: The Movement Reclaiming the Narrative

This statement gets to the heart of why Isabelle founded The Care Experienced Movement. Her goal with the organisation is to move care-experienced people from being spoken about to being the ones actually shaping the conversations, narratives and systems that have had, and continue to have a direct impact on their lives. 

“We’re the only organisation I know of that’s fully care-experienced from the ground up,” she says. “Our board, our team — everyone has lived it. That does make us unique.”

As someone with her own experience with the care system, Isabelle understands how valuable it is for the community to have care-experienced people leading this work. 

“There’s a shared language, a deeper understanding and an almost automatic trust there. It's like we're siblings in a way, because although we all had our individual upbringings, we grew up in the same system Isabelle explains.

At first, the team focused on working within government — pushing for policy change and legislative reform. But after taking a year out to have her first child, she came back with a fresh perspective on what impact could and should look like for the care-experienced community. 

“We’re still going to work in the policy area, but actually working directly with a young person to enable them to have a friend who’s also shared the same experiences is the change that we're working towards now. If we can have an impact directly with somebody, that's more meaningful growth to me" 

Today, the movement blends consultancy, training, arts, storytelling, and lived experience leadership. They’re delivering workshops to help organisations understand how to better communicate with people who’ve been through the system. They’re also running creative sessions like spoken word and drama, giving care-experienced young people space to connect. 

Isabelle has found that this approach means that conversations to do with policy or systems change work can actually flow more naturally too, helping her and the team to absorb that feedback and share it with others, and so the change in approach is a win-win. “People will come along and do some drama games or crochet blankets, and then those conversations about system change and policy change just naturally happen, and that makes it easier for our community to get involved in because there's less pressure for them to share." Isabelle explains. 

“We’re about to run a social media campaign exploring how we can change the public narrative about what care experience actually is, beyond the headlines people see or the policy papers that get released.”

Isabelle says this shift wouldn’t have been possible without the Pathways Fund. “If we didn't have that stable funding, we wouldn't have been able to make that change and have that growth.”

And that’s not all that’s helped her to keep delivering the important work that Care Experience Movement does. The Wellbeing Grant has been “life-changing” for Isabelle.

Alongside that, at the start of the year, Isabelle didn’t think she was able to attend a partner event as she didn't have childcare, and Blagrave offered to cover the costs for her partner to come down and do the childcare there. “ I was like, "What is that about?" I've never heard of any funder ever offering to pay for childcare costs, accommodation, travel. It meant I could engage.” 

“We’re starting to see tangible impact,” Isabelle says. Partners like Missing People have changed the language they use after training with them. Creative workshops have given young people new ways to connect and feel safe. Isabelle describes the shift as immediate and tangible. “When you see another organisation change its practice in the language they use when talking to care-experienced young people, that’s massive. I know those young people are feeling valued because they’re being spoken to in a way that they want to be spoken to, not just in language used in a policy document. It’s tangible. It’s real. And we see the impact immediately.”

Despite all of their progress, barriers still remain. “Our lived experience is our strength, but it is a challenge,” Isabelle says. “This work is personal, which can be draining. Financial insecurity is constant. Local authorities often ignore our emails because they don’t want to be challenged. The system itself is a barrier.” Capacity is another struggle. “There’s so much that needs to be done, and we’re a small team. We can’t do it all.”

She’s also frustrated by how funding flows. “Care experience is a hot topic right now because of the government’s Care Review, but the money often goes to big, established organisations, which can feel performative.”

This funding approach also reinforces the exact issue that the Care Experience Movement was founded to dismantle. “It kind of goes back to that feeling when you're care-experienced, that you're listened to, but only in a certain way or a certain space.” 

Her message to funders who want to support the care-experienced sector is this:

“Trust the people doing the work. They know what they’re doing. And if they don’t, they’ll ask for help. Funders need to be open and ready to support beyond just giving money too. That’s the big thing: don’t just throw funding at an organisation and hope for the best. From a care-experienced perspective, listen to the people living it. Pay attention to the work they’re drawn to, and the change they want to make. And finally, trust that care-experienced people come to this work for a reason.”